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Fighter would be the best adjective to describe
now, 17 years old, Ashlyn Horry. Born April 2, 1994, with severe respiratory issues and a host of other complications requiring a six month stay in Texas Childrens Hospital’s Neonatal Intensive Care Unit, she has endured. After numerous tests, multiple surgeries and several near death experiences, Genetic Physicians found that she had a rare chromosome abnormality; partial deletion of her number 1 chromosome (short arm). Not much information was known at the time to have any frame of reference or "road map" to go by. In fact, the abnormality didn’t even have a name. In just recent years, a name has been attached to this chromosome abnormality. It is now known as 1p36 Deletion Syndrome.
The Ashlyn Horry Foundation is committed in providing community initiatives focusing on youth disabilities and caregivers while providing resources for development and empowerment regardless of economic status, race, religion or creed.
1p36 deletion syndrome is a genetic condition that is caused by missing part of chromosome number 1. read more
While individuals with this syndrome have facial features similar to their family members, they may also have the facial characteristics commonly seen in others with 1p36 deletion syndrome. read more
Currently, there is no specific treatment or cure for this condition. The approach to the management of children with chromosome 1p36 deletions is similar to all children who have a complicated medical condition. read more
  • Acknowledgement - The Horry family would like to thank each of you for your prayers, thoughts, and support during this difficult time.  We want to let you know that you are greatly appreciated.  Please stay tuned for upcoming events as we continue to preserve Ashlyn's legacy.